Category Archives: patient activism

An Emmy for “Life, Interrupted” videos

I’ve posted before about the amazing blog–written & video–that Suleika Jaouad has been composing for the last couple of years, “Life, Interrupted”.  This year, the video segments were nominated by the National Academy of Television Arts & Sciences for an Emmy … Continue reading

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Life, Interrupted: A Battle With Myself

A new post form the New York Times Well blogger, Suleika Jaouad: I used to resent the battle metaphors associated with cancer. “Keep fighting,” people would say. “You’re going to win this war,” a friend would write in an e-mail. … Continue reading

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Patients Find Each Other Online To Jump-Start Medical Research

From NPR: People with extremely rare diseases are often scattered across the world, and any one hospital has a hard time locating enough individuals to conduct meaningful research. But one woman with an extremely rare heart condition managed to do … Continue reading

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